About the Registry of Patient Registries (RoPR)

This system contains registry specific information intended to promote collaboration, reduce redundancy, and improve transparency among registry holders.

The RoPR data entry system allows for registry owners to provide information about the following:

  • Classification and Purpose - the type of registry and its purpose
  • Contact and Conditions of Access - circumstances under which the registry can be contacted, and contact information for those interested in collaboration, participation and/or data access
  • Progress Reports - includes information about the growth of the registry and any relevant references to available progress reports
  • Common Data Elements - Descriptions of registry-specific standards, scales, instruments, and measures

The Agency for Healthcare Research and Quality (AHRQ) has designed and deployed the RoPR system to complement ClinicalTrials.gov by providing additional registry-specific data elements.

AHRQ Advancing Excellence in Health Care